Fibrous Dysplasia/McCune-Albright syndrome (FD/MAS) is a rare and complicated disease which may affect different organs and the skeletal system. When the disease is solely located in the bones, it is referred to as Fibrous Dysplasia (FD), and when organs are affected, it is identified as McCune-Albright syndrome (MAS).
FD and MAS are caused by the exact same gene mutation. When the disease appears and how it develops over time is different. Not much is known about FDMAS. Fibrous Dysplasia/McCune Albright Syndrome Australia was launched to Raise awareness about the rare condition Fibrous Dysplasia/McCune Albright Syndrome (FDMAS) and to Provide information for diagnosis, care pathways & support groups.
With FD/MAS not one care plan fits all. The rarity of the disease and its variable presentation leads to misdiagnosis and a delay in treatments and support. You are not alone!
Please note: FDMAS Australia volunteers cannot provide medical advice. For all urgent medical matters, please refer to the emergency department of your local hospital or call 000. For other medical matters, contact your medical and/or health team.
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