If you are diagnosed with FD/MAS you are possibly feeling confused, scared, concerned and a bit lost.
You are not alone! 1 in 11 people have a rare disease.
Yes you have a rare condition, and probably your doctor has never had another patient with FD/MAS, but there are various groups in Australia bringing people together.
Fibrous Dysplasia/McCune Albright Syndrome Australia was launched to Raise awareness about the rare condition Fibrous Dysplasia/McCune Albright Syndrome (FDMAS) and to Provide information for diagnosis, care pathways & support groups.
This clinical pathway has been developed by a team of top medical experts across the world. The pathway includes questions to ask about your diagnosis, planning your care and questions you may need to prepare answers for!
Thank you to the International Consortium for FDMAS for putting this resource together.